Tag Archives: osteogenesis imperfecta

Pity Pots and Validation

With OI, these things happen randomly and unless a bone is poking out, we tend to complete our plans.

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Why Would I Look that Gift Horse in the Mouth?

I was ten months old when I was diagnosed. After my second round in traction for femur fractures, the doctor advised my parents to take me home but try not to get too attached.

A person with brittle bones disease, osteogenesis imperfecta, OI, can look like every other person or they can present as extremely small, distorted and very disabled. It really has no rhyme or reason. It is a collagen disorder and can appear in a family seemingly at random.
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