A friend told me that if all I do is complain, people are going to avoid me. She was a wise friend.
I have a bone disease called Osteogenesis Imperfecta, OI, and it is a very quirky disorder. Those of us effected by OI have very unreliable bodies.
The following description has been lifted from the OI Foundation’s website.
Facts about Osteogenesis Imperfecta
|Osteogenesis imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her life time.
On Saturday, the van was warming, we all had our shoes on, the dog was dressed and I flung my purse over my left shoulder. The simple action turned my humerus in a strange way and my shoulder popped out of place.
With OI, these things happen randomly and unless a bone is poking out, we tend to complete our plans.
Having a shoulder out is very inconvenient, a set back. I takes a week or maybe two before it is healed. I complain about these things. They are so random and so stupidly caused that I can’t help but allow myself time to feel both anger and disappointment over the injury. I’ll announce the injury and when I feel sufficiently validated, I adjust my activity level and go on with life.
Yesterday, predawn, I shifted in bed, a common area for injury usually related to pushing a blanket away. I swore, settled back in to finish my slumber, knowing I had just popped my right shoulder.
I announced this injury as well, making sure people around me knew how unfair I think it is to have both shoulders out at the same time.
I use hand controls and I cannot drive, I cannot climb and I cannot hitch my pants up without a lot of maneuvering and thought. So, I am bummed.
While this post looks like a complaint and no one wants to hang around a complainer, I consider it a momentary self indulging plea for validation.
When I say both shoulders are out, now, I want a knowing nod, something that conveys, belief. This is an unbelievable disease.
After some self indulgence, I can go on to the brighter side.
At least it isn’t an all out fracture. At least I have an activity level that can be adjusted. Thank goodness I have clothes to fight with. And I am thankful that my family gets it.
So, now, I am going to get off my pity pot, pull up my pants the best I can and get on with life.
Thank you all for visiting and indulging me. Comments are welcome. Come back in a few days.